Two years with severe epilepsy "unable to get" cannabis


A two-year-old girl who is believed to be the first daughter of the United Kingdom who has been prescribed medical cannabis is delayed receiving treatment. Jorja Emerson's father claims that the epileptic daughter can not yet have £ 3,000 of three-month reserve of cannabis oil because no UK pharmacy is authorized to sell it. The family, from Northern Ireland, fought for weeks to get the prescription from a private hospital in London. But now they have been told that they have to face a further delay in getting the treatment they hope will stop its deadly attacks, which can go up to 30 a day. One MP defined the situation as an "assault on the bureaucracy" and even suggested that he go personally to Canada to take drugs.

Two-year-old Jorja Emerson is believed to be the first to be prescribed medical cannabis since the drug was reprogrammed in November

Robin Emerson with his daughter Jorja, who has been prescribed cannabis oil to help with his potentially lethal epileptic attacks, of which he has up to 30 per day Robin Emerson, Jorja's thirty-one year old father, said: "We are leaving the bureaucracy hampers saving the lives of children. "Jorja is entitled to her medicines and is legal. There should not be any problem. "He urgently needs treatment, he added, and currently has a chest infection that is" unleashing his attacks. "He added," Anything can happen. "The family started They waited Tuesday when they took their daughter's prescription from a hospital pharmacy to begin the import process, when she was told that it would take two weeks to import cannabis oil from Canada, but the Jorja's father now fears that the process will take "weeks or months." A government spokesman pointed out that medical cannabis "can be imported using pharmaceutical wholesalers with the appropriate license." Drug wholesalers in Britain have had to apply for new licenses after the change of law on November 1, which could slow down access to the drug Sir Mike Penning, a member of Hemel Hempstead and co-chairman of a parliamentary group on medical cannabis, criticized the slow movement officials in the case of Jorja. "Parents like Robin already have more than a full head, addressing the stresses and tensions of caring for very sick children," he said. "The last thing they need is a long and tortuous process to get actually the medicine that has been prescribed. "This course of assault of the bureaucracy must be resolved once and for all." In the meantime, if this requirement is not resolved soon, I intend to ask a small group of parliamentarians questioned by me and my co-president Tonia Antoniazzi to go and get it from Canada and give it to Robin for Jorja. "

Jorja Emerson's father, Robin (pictured together), persuaded a neurologist at the private Portland Hospital in London to help his daughter claim that the NHS had "turned away" from Mr. Emerson, who takes care of his daughter with her mother, her ex-partner Carly Emerson, also 31, said treatment is "the difference between her life and her death." Jorja, who comes from Dundonald in Down County, Northern Ireland suffers up to 30 seizures every day. She was born with a rare chromosomal disorder, which is not endangering life but causes a delay in development and, when she was 10 months old, triggered epilepsy. Now any daily crisis in Jorja has the potential to kill her, and Irish doctors have even said that her condition is terminal. Mr. Emerson said he will not leave London until he has obtained cannabis oil, which will be given as a few drops placed on the tongue twice a day.

Jorja (pictured) has now become the first child in the UK to be prescribed medicinal cannabis, but at a cost of £ 3,000 for a three month supply. Cannabis oil is administered from a bottle using a syringe, with a few drops on the tongue twice a day. British law changed on November 1 to allow medical specialists to prescribe cannabis-derived medicinal products containing the THC.THC compound of cannabis that makes people tall, and that's what made medicine based on drugs illegal. of marijuana in the past. Despite being legalized, cannabis oil remains unlicensed – it means there are no guides to prescribe it – and doctors are reluctant to distribute it. And, immediately after the change of rule and with so few people receiving prescriptions, it is not yet widely available through pharmacies in the United Kingdom.

Emerson is paying £ 3,000 for a three-month supply of cannabis oil to his daughter (the two are pictured together), and will have to fly to London for every repeated prescription. The government spokesperson added: "There are already a range of products that can be provided and we are working closely with a number of other manufacturers to ensure that a wider range is available to the specialists they prescribe for their patients. "There is a small number of patients who are already receiving treatment after lawful importation, he added. And no The import licenses of the Ministry of Interior were rejected by pharmaceutical wholesalers with an appropriate license in relation to medical cannabis. He did not want to comment on the specific case.

The cannabidiol drug (pictured) will be imported from Canada. Mr Emerson will have to fly to London for every repeated prescription

Although not life-threatening, when Jorja (pictured) was ten months old, she unleashed epilepsy – and now every attack is potentially deadly. Cannabis for medical use was made legal on November 1, following the high profile cases of two other young epileptics, Alfie Dingley and Billy Caldwell. The parents of the boys were given a special permit from the Ministry of Internal Affairs to import the products they had already used from abroad. At the beginning of this week, former university professor Carly Barton, 32, became the first adult to receive cannabis oil to alleviate the pain caused by fibromyalgia. She was a teacher of fine arts, but developed the condition of chronic pain after suffering a stroke in the early twenties.

It is believed that Carly Barton (pictured) is the first patient in the UK to receive medical cannabis, but has had to go to a private doctor and pay thousands of pounds. For years he used cannabis illegally to alleviate pain, but now he can get a three-month supply for £ 2,500 through a private doctor and a manufacturer in the Netherlands. But since the Ministry of the Interior has to authorize delivery, it may take weeks before Mrs. Barton receives her cannabis. So, he explained, he is blasting all his savings with just one prescription before going back to illegally taking it. IS MEDICAL CANNABIS LEGAL IN THE UNITED KINGDOM? The medicinal cannabis oil has become available on prescription since November 1st, the interior minister announced in October. Javid Javid revealed that the laws are changing to allow the prescription of cannabis-based products for medicinal use in England, Scotland and Wales. re-examine medical cannabis after high-profile cases of patients who have been denied products containing THC, the psychoactive compound that makes users "tall". Epileptic boy Billy Caldwell has even been banned from taking cannabis oil prescribed abroad. He was given back the medicine after a high profile campaign led by his mother forced Mr. Javid to grant a 20-day emergency license for his use. The interior minister has repeatedly insisted that change was not the first step towards the wider legalization of cannabis. Javid announced, on June 19, that the 2001 Misuse of Drugs Regulations was examined in a two-part investigation to allow the prescription of products based on medicinal cannabis.

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