Finding Support for Psoriatic Arthritis

Living with psoriatic arthritis (PsA) can be challenging, but connecting with others who understand can significantly improve your quality of life. Support groups and online communities offer a space to share experiences, learn coping strategies, and stay informed about the latest advancements in treatment. Here’s a look at organizations that provide valuable resources for people with PsA.

CreakyJoints

CreakyJoints is a digital community dedicated to supporting individuals with arthritis and their caregivers. CreakyJoints provides education, advocacy, and patient-centered research resources for all types of arthritis, including PsA. The Psoriatic Arthritis Club podcast, produced by CreakyJoints and the Global Healthy Living Foundation, features conversations with experts and fellow patients navigating life with PsA. Episode 2 of Season 3 focuses on busting myths about psoriatic arthritis and psoriasis.

Talk Psoriasis

Sponsored by the National Psoriasis Foundation, Talk Psoriasis offers a range of support services. These include a free helpline, patient navigators to guide you through your journey, and the Psoriasis One to One program, which connects you with another individual living with psoriatic disease.

Live Yes! Connect Groups

The Arthritis Foundation’s Live Yes! Connect Groups facilitate connections with local, peer-led support groups. In addition to in-person meetings, Live Yes! likewise provides access to webinars, podcasts, exercise videos, and an arthritis helpline.

Understanding Psoriatic Arthritis

Psoriatic arthritis is a type of arthritis that affects some people with psoriasis, a skin condition characterized by itchy, scaly patches. While psoriasis often precedes PsA, joint pain and stiffness can develop before or alongside skin symptoms. Psoriatic arthritis causes inflammation in the joints, leading to swelling, stiffness, and pain. Up to 25% of individuals with psoriasis may develop PsA.

Key Takeaways

• Connecting with others can provide emotional support and practical advice for managing PsA.
• CreakyJoints offers a digital community, podcasts, and research resources.
• Talk Psoriasis, sponsored by the National Psoriasis Foundation, provides a helpline and peer support programs.
• Live Yes! Connect Groups from the Arthritis Foundation connect you with local support groups and online resources.