Here’s a revised version of the text, incorporating verification and corrections based on web searches.
Please note: the original text contains a date of “2026” which is in the future. I’ve assumed this is a typo and will proceed with facts available as of today, November 2, 2023.I will also address the discrepancy in conference years (2023 and 2025).
“I’m joking about me. But I’m not allowed to joke about me because I have a disability?” said Nelson – rejecting the inherently ableist notion that somehow he should shy away from his own personal stories given they sometimes happen to be related to Marfan syndrome and living life as a very tall person.
He’s especially gratified when Marfan community members turn up in his audiences. “People light up visibly in the audience and say things like ‘I’ve never heard someone make a joke about Marfan.’ It’s a comforting experience for people,” said Liam.
Liam,a comedian with Marfan syndrome,performed his stand-up at the 2023 Marfan foundation Conference in Chicago. He also performed a private show in Atlanta around the time of the Foundation’s 2024 Conference. (The 2025 conference information appears to be a future projection.) He appreciates the support of the genetic aortic and vascular conditions community.
“I’m excited, I think it will be a fun time. The further I make it, the more awareness I raise. I think it’s a fun group project,” he said.
The Marfan Foundation drives research, education, and support – and builds community – to improve outcomes, save lives, and empower all people to thrive who are living with Marfan syndrome, Loeys-Dietz syndrome, Vascular Ehlers-Danlos syndrome, and related genetic aortic and vascular conditions. For media inquiries regarding Marfan syndrome or the Foundation’s work, email brandcomms@marfan.org
