Alicia Rebollo She was the mother of three children, before died at the age of 42 as a result of a tumor on June 17 in Leon.
She was also the wife of Ricardo Fernandez Moruecowho entered the story contest of the ‘Supercaregivers’ Award from UNIR, which rewards family or professional caregivers.
A little over 5 years ago they had their son Marcowho was born affected by the Schaaf-Yang syndrome. It is a very rare and unknown disease: there are only a little more than 200 diagnosed cases worldwide, and a dozen in Spain.
It can cause symptoms of variable severityincluding respiratory problems such as apnea, specific facial features or digestive problems.
Due to his illness, Marco needed 24-hour care and surveillance of the day He had several machines that guaranteed his life: home respirator, secretion aspirator, pulse oximeter.