Understanding Dementia: A Kildare Woman’s Story and the Growing Need for Awareness

Dementia is a growing global health concern, impacting millions of individuals and their families. In Kildare, Ireland, Maureen Garry, a 68-year-old woman living with Alzheimer’s disease, is sharing her story to break down the stigma surrounding dementia and encourage greater understanding within the community. Her journey highlights the challenges faced by those living with the condition, as well as the importance of support and inclusivity.

Young-Onset Dementia and the Impact on Life

Maureen was diagnosed with young-onset dementia shortly after being widowed and left to raise her four young children. Young-onset dementia refers to cases diagnosed before the age of 65 . She described the initial diagnosis as a terrifying and isolating experience.

“I was terrified and had four young children to gaze after,” Maureen shared. “It was life-changing. I was lost, scared and lonely. But over time, I found strength I didn’t know I had.”

The condition has gradually impacted Maureen’s ability to perform everyday tasks, from getting dressed to tying shoelaces. Once very independent, she now relies on staying close to home and rarely ventures out alone. She fondly recalls a trip to Disneyland in France with her children before her diagnosis, driving abroad for the first time with a six-year-old as her co-pilot – memories that serve as a poignant reminder of how Alzheimer’s has changed her life, but also of her enduring strength.

The Importance of Community and Support

Maureen emphasizes the importance of public understanding in addressing the challenges faced by people living with dementia. She notes that a lack of understanding often leads to stigma and fear.

“People often don’t really understand what dementia is, and I think that’s the biggest misunderstanding of all,” she explained. “There are still stigma and fear around it, simply because people don’t know enough about the condition.”

She advocates for a proactive approach to communication, suggesting that individuals with dementia openly share their condition when seeking assistance. “If I am out and I need help, I’ll turn to the person beside me and say, ‘I have a type of dementia – would you mind helping me, please?’” she said. “This has been my personal experience, and everyone’s dementia is different – but understanding and kindness make a huge difference.”

Finding Strength in Advocacy and Connection

Maureen found support and purpose through the Irish Dementia Working Group, a national advocacy organization comprised of individuals living with dementia . She described finding “her people” within the group, where she could collaborate with others facing similar challenges and advocate for improved supports and awareness.

“Everybody matters. Everyone has a nugget of wisdom, and when we are all working in the same room, it truly is amazing,” she said. “We all have a purpose and being a member of the Irish Dementia Working Group helps us all uncover that purpose.”

To those newly diagnosed, Maureen offers reassurance: “This is not the complete – it’s the start of a novel beginning. Your voice is what protects you. Be honest; people are helpful. Trust your gut. Make sure to take all the support you can. Make contact with The Alzheimer Society of Ireland. You don’t have to go through this on your own.” She also advises focusing on positive memories: “Don’t look back unless it makes you smile.”

Community Initiatives in Kildare

The Alzheimer Society of Ireland (ASI) is actively working to create dementia-inclusive communities, including in Kildare. Helen McLeane, manager of the charity’s Kildare Day Care Centre in Kildangan, emphasizes the transformative power of community awareness initiatives . The ASI provides a range of services in Kildare, including Day Care, Home Care, Social Clubs, and access to a Dementia Adviser. The Kildare Day Care Centre opened in 2023.

“The Alzheimer Society of Ireland’s Friends of ASI initiative is about empowering communities to better understand dementia and support the people and families who live with it every day,” McLeane said. “When local people, businesses and services take even small steps to be more aware and welcoming, it lifts people’s confidence and helps them stay connected to their community.”

A dementia-inclusive community event hosted by the Friends of ASI initiative will take place at the Keadeen Hotel in Newbridge on February 26, 2026, at 7pm, bringing together organizations and residents to explore ways to better support those affected by dementia .

Resources and Support

The Alzheimer Society of Ireland National Helpline is available on 1800 341 341 or via alzheimer.ie.