Eddie Vedder and Filmmaker Matt Finlin Shine Light on Rare Disease Epidermolysis Bullosa in New Documentary

Pearl Jam frontman Eddie Vedder and Canadian director Matt Finlin have collaborated on “Matter of Time,” a documentary concert film raising awareness about epidermolysis bullosa (EB), a rare and debilitating genetic skin condition. The film, which premiered at the Tribeca Film Festival and has since garnered accolades at several film festivals, is now streaming on Netflix as of February 9, 2026.

Understanding Epidermolysis Bullosa

Epidermolysis bullosa (EB) is a group of rare genetic skin disorders that cause the skin to be extremely fragile. Individuals with EB experience blistering, pain, and wound formation from minor friction or trauma. Those affected are often called “butterfly children” due to the fragility of their skin CBC.

The Making of “Matter of Time”

The documentary follows families, researchers, and activists working to find a cure for EB. It was filmed against the backdrop of Vedder’s 2023 solo concerts in Seattle, which served as benefit shows for the EB Research Partnership (EBRP), an organization co-founded by Vedder and his wife, Jill, fifteen years ago after learning about the disease through family friends CBC.

Director Matt Finlin, a Niagara-on-the-Lake film producer, initially planned to document a summit organized by EBRP, bringing together experts and families affected by EB. He recognized the power of capturing the emotional and informational aspects of the gathering and incorporated Vedder’s concerts as a space for connection and support The Spectator.

Finlin emphasized the challenges faced by families traveling with EB, noting the extensive supplies needed for wound care and the trust built with families allowing intimate moments, such as bandage changes, to be filmed The Spectator.

Hope for a Cure

EB is a monogenic condition, meaning it’s caused by a mutation in a single gene. Researchers believe a cure is within reach, and a breakthrough in EB research could have broader implications for treating other rare genetic diseases CBC. The film highlights the potential for this research to unlock treatments for thousands of other monogenic rare diseases.

Awards and Recognition

“Matter of Time” has received critical acclaim, winning Best Music Feature Documentary at the Nashville International Film Festival and Best Film at the San Diego International Film Festival. It too enjoyed a 30-theater run across the United States and Canada Niagara Now.